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| Only Chronic Illness Warriors know how lonely living with a chronic illness is. |
I have been deeply hurt by people that I care so much about. I was blown away, but I understand. People that don't have chronic illness, especially as invisible illness, have a hard time grasping "what is wrong with you". I wish there were a way for people to understand how truly challenging it is to battle chronic illness and chronic pain every day of your life. I have good days and bad days. I never know how I am going to feel. I can't predict when I will have a good day vs. a bad day. I have days where I am feeling okish, so my husband and I try to get some errands done. We can be out and about and Whamo! I get knocked down so hard. We have to go home immediately, which I feel so guilty about. It totally sucks. I have no control over my flare-ups and attacks, so I try to make the best of it.
I feel so alone. I have my husband, girls and friends, but I still feel alone. I miss Girl's Night Out and spending time with my friends. I find a way to keep going. To be honest, I am having a very difficult time moving forward, even one second at a time. I hope this feeling passes.
