Pain

OK. Here comes a whiny, pitiful post. This week has been one of the absolute most hardest weeks that I have had to endure in a very long time. I got my Botox almost two weeks ago. I let the nurse practitioner do it, with my neurologist right there, because she was learning. I totally wanted to tell her no, but I know that people have to learn sometime. I remember what it was like being a nursing student. When she was doing the injections, I was a little concerned because she would scrub the area with alcohol when she was done. Gah! Not supposed to do that, makes botox move and settle elsewhere. My neck and shoulders haven't been the same. I have indentations in my forehead where the botox injections were given.

This past week, I have been dealing with the worst migraine. I normally get migraines on the left side of my head. This one has been on my right side. It has been a beast that has set up camp. Today it is so bad. Intense throbbing, pulsating, bounding and stabbing pain. I can hear the heart beating throughout my body. I can feel the pulsing sensation between each and every tooth, in my tongue, everywhere in my body.

My vision is blurry. I have been running a fever. I called the infusion center to see if I could go in for migraine cocktail. They are not comfortable with me going in, because last time I was there, I started having seizures and had to be transported to the ER, and I bought myself an overnight stay at the hospital. The charge nurse called my Neurologist to see how he felt, and he said that he will call me. He doesn't feel comfortable with it either, until he does a work-up. So, my husband had to come home early from work.

My GP is flaring up. Having the hardest time swallowing pills. Everytime I do, it feels like there are razor blades stuck in my throat. Putting a message into my primary care doctor as well.

POTS is also flaring, which wipes me completely out. I can barely walk to the bathroom. I am having a hard time walking right now. My legs are so tremulous. When I walk down stairs, they shake so bad. The best way to describe how I am walking, is by comparing it to a puppet. It feels like my legs are loose and wobbly and a puppet master is trying to help me walk. I get so short of breath, just getting out of bed.

I have been having to  straight cath myself a lot this week. Which is a bummer and a real set back. Makes me so sad because I had high hopes that is was getting better, because I haven't had to cath in almost a month. I have had to cath over half the time, this week.

Had this fever all week. They still don't know the cause. I have had a work-up with infectious disease. They think it goes along with all the other auto immune issues.

I'm really struggling. I am sorry to complain.I have a very important wedding that I have to go to tomorrow. I know that things will get better and this too shall pass, but man! I hate how everything went kerplunk at once!