We've joked about this for weeks, but mentally and emotionally I really didn't think I was there yet. My husband tried to take me to look for one after our appointment and I just couldn't do it. I broke down in tears and sobbed.
I am so confused. I have no idea where my life is going. I hate that I have become a hermit. I'm sure that if I were to die tonight nobody would even notice I was gone, other than my family and close friends that see me. I have been a hermit for over a year now and it is hard. More and more of my independence is being taken away from me. I don't know who I am anymore. My name is Amber, but I am not the same Amber that I was 2 years ago. I still smile, sing terribly, and attempt to dance when able, but it's just not the same. I am wasted space that sits in Grandma's chair and does research and work with Chronic Migraine Awareness support group. I will tell you more about that later.
Tonight I am feeling defeated, so, so defeated. I just want to curl up like a potato bug and cry my eyes out. Maybe after I unravel, I will find myself pain free. Living with daily pain takes so much out of me. But I try to do the best that I can. As long as my pain level is at an 8 or below, I can function. I don't dare drive too far, for my own safety as well as others. I HATE having to depend so much on others. I hate that I can't do the things I want to do. I hate that because of my stupid migraines my children and husband have to suffer. I hate that I can't be there for my family the way that I want to be. I hate that I can't plan my life.
I am 35 years old. I have to use a catheter to pee and now I have to use a "walking stick" when I am up and walking around. I am 35, yet I feel like I am 105. Please, just make it stop.
I heard this song tonight, and it just spoke to me.
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