- My speech is slurred, and often incoherent
- I have short term memory loss
- My face, left arm and right leg go numb
- other areas may also go numb
- I can't empty my bladder so I have to straight cath to empty my bladder
- I fall frequently, which is why I now have a cane
- I have not been able to work in a year and a half
- I can't drive
- I can't even take care of my own house and family
- I need help getting in and out of bed
- I vomit
- I lose my independence
- I can't do the things I want to do
- I can't plan my life
- I have to cancel plans because of migraine
- I get allodynia, where even my hair hurts
- I am exhausted, but can't sleep because the pain is so severe
- I have to hibernate for days, sometimes
- I show my face for Dr. appt's mostly
- I miss several family functions
- I am in excruciating pain
- I have 2-3 days a month that I can function fairly well
- I grieve me, I grieve the person I used to be and the person I want to be.
I did not choose this life, but I make the most of the life that I do have. I have tried to make myself invisible my entire life. When I heard this song, I shed so many tears, but it was so healing at the same time. But instead of hiding under the bleachers at lunch, I was the one hiding out in the library.


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