Wednesday, April 16, 2014

A snippet of what I go through with migraines

These past few days have not been my favorite. I know that some of you get tired of hearing about migraines, but if I don't share my journey, how are people ever going to even begin how horrific migraines can really be. Let me share with you a little snippet of what occurs when I get a flare up:
  • My speech is slurred, and often incoherent
  • I have short term memory loss
  • My face, left arm and right leg go numb
  • other areas may also go numb
  • I can't empty my bladder so I have to straight cath to empty my bladder
  • I fall frequently, which is why I now have a cane
  • I have not been able to work in a year and a half
  • I can't drive
  • I can't even take care of my own house and family
  • I need help getting in and out of bed
  • I vomit
  • I lose my independence
  • I can't do the things I want to do
  • I can't plan my life
  • I have to cancel plans because of migraine
  • I get allodynia, where even my hair hurts
  • I am exhausted, but can't sleep because the pain is so severe
  • I have to hibernate for days, sometimes
  • I show my face for Dr. appt's mostly
  • I miss several family functions
  • I am in excruciating pain
  • I have 2-3 days a month that I can function fairly well
  • I grieve me, I grieve the person I used to be and the person I want to be.




I did not choose this life, but I make the most of the life that I do have. I have tried to make myself invisible my entire life. When I heard this song, I shed so many tears, but it was so healing at the same time. But instead of hiding under the bleachers at lunch, I was the one hiding out in the library.


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