I Will Rest In You!

I went a Neurourologist today. He is a Urologist that specializes in female issues. I hate being a damn puzzle. Anyway, he would like me to try Valium vaginal suppositories when I am not able to void independently and I have difficulty cathing. Recently, I have had difficulty cathing, without screaming in pain. My fluid consumption is consistent every day. I drink lots of water. I have a set schedule to go every 3 hours, if I can't go on my own, I need to cath. If I am unable to cath, I am supposed to use a Valium suppository. It is supposed to help relax the pelvic floor. If that doesn't work, then Urologist would like to repeat urodynamics test and scope my bladder. One thing I was very impressed with, is he actually listened. He said "if we do the urodynamics test when you are having a good day, in regards to voiding on my own, it will not be helpful at all". So the tricky part is getting in to do a urodynamics study when I am having difficulty voiding and/or cathing.

A urodynamics test is a test they do to see how much abdominal pressure it requires to get the stream going. They have me void before the cath, for a baseline status of my ability to urinate on my own.  After which, catheter is placed and they fill my bladder with water. I tell them when I feel like I have to go, they infuse more to see how much more fluid my bladder can hold. I am supposed to tell them when I feel like I am going to pee my pants. At that point, they have me try to void again. I am hooked up to a machine similar to EEG that has steady wave form and spikes when I am voiding. It also shows them how much abdominal pressure it takes to start a stream and if the stream continues or if it spasms. I forgot to mention, while the catheter is in place, they have me bear down to see if I have any leakage or incontinence. Based on the findings of the urodynamics study, they will scope the same day to see if there are any changes from previous scope.

So, that's the plan for now. I sure am expensive. I think I am trying to make it into the Guieness Book of World Records to see how many doctors I can see in a year.

Good gracious. I wish I felt better. I swear if it's low migraine day, it high fever day. Recently, I have noticed my vision has changed significantly. I am seeing double frequently. My GP (gastroparesis, delayed gastric emptying) has been flaring up. I am having difficulty eating, so I have to make every calorie count, for my benefit. No wasted calories. Last week I weighed 122 lbs. Today I weighed 116 pounds. Between the vomiting and diamena, it's becoming a struggle. Hopefully the GP flare up is short lived, so I can at least go back to BRAT diet.I have been  drinking 1-2 Chia Squeeze Vitality.

So that's the update for today. Over and out!

I am so grateful for my many friends and family that can make me smile and laugh, being with happy, uplifting people is the biggest thing I need the most now.  

There are days that I struggle and wonder how I can keep fighting. Praying helps. Blessings helps. Music is very therapeutic. I know I always have somebody to help me, to carry me when I felt like I was left alone. Footprints in the Sand.

This song, "I Will Rest In You", by Mindy Gledhill, is a song that brings me so much comfort and courage to keep fighting. To keep moving forward one step at a time.