Wednesday, July 9, 2014

Oh! The pain?

There are days, like today, that I have a strong dislike for my body. This afternoon, the entire right side is my body went dead numb from my  head down to my toes. Made me a bit nervous because I have never experienced, an incident  where entire side of my body went numb. Scared the hell out of me. Luckily Rick was here. He came down. I was able to speak normally. My smile was equal. My right hand was a little cooler to the touch, but otherwise, all was well. The episode lasted about 20 min, then it turned to pins and needles numb.

I experience numbness with migraines frequently, but never have I had an entire side go numb.

I have been having severe, excruciating pain when I walk. It's like my bones are grinding. Every time I put a foot down, the pain is unbearable. I cry. Oh my goodness, this is all scaring me. I wish I knew what was going on.

I am tired of being the complicated, puzzling zebra. I want to be normal and enjoy my life like everybody else, even just for a day.

I have so much fear of the unknown.

I have an appointment with a rheumatologist in August, so hopefully, we will be able to figure out if a lot of this is in fact caused by Sjogren's or if there is more to the puzzle.

I continue to take each day as it comes. I do my best. I will never give up.



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