18 days

How I look with high pain level.

I am ending the day with the same migraine that started 18 days ago. My pain level has not dropped below 9. I am a bit peeved because I called neuro's office on Thursday, to let them know that I had been suffering for 15 days with a migraine of excruciating pain. The receptionist promised me that he would call me back by the end of the day. My dear, sweet Jamie, came and hung out with me all day long so that she could take me in if needed. The day came and went and I did not get a phone call.:( 

 I have had migraines last for days, as it is I have migraines nearly every single day, but I am able to function somewhat. But I have done nothing these past 3 weeks but lay in agony. My head hurts, my hair hurts, my body hurts, my teeth are pulsating, my head is pounding like a rock band is jamming away in there. I have photophobia,(sensitivity to light, which I rarely experience) phonophobia, (sensitivity to sounds, even the sound of air is too loud), and hyperosmia (sensitivity to smells), and allodynia (which is a painful response to something that normally would not cause pain). A great example of allodynia that refers to me, is my hair hurts. If my hair so much as moves it causes such pain. To help the allodynia, I keep my hair covered with a head/hair wrap of sorts. I am almost to the point that I just want to shave it off!!

I started feeling even worse around 6ish. I had gone downstairs to try and spend some time with my  family and try to be "normal". All of a sudden I got so weak, exhausted beyond belief, extreme shortness of breath, all of which were accompanied by the most excruciating pain that brought me to tears. Rick, Savannah an Mallory helped me get upstairs to bed. My heart started doing some funky rhythm, it felt like trigeminy or something. You could even feel it with my pulse. When I checked my pulse, my heart was beating very, slow. I counted manually for one minute and got a heart rate of 44. I took my blood pressure, it was o.k. but my pulse was so low it didn't even register. I did not want to go to the ER if I could avoid it. I called my PCP's answering service, and to my luck it was my PCP that was on call. He called me, explained everything that was going on. He asked if I wanted to go to the ER, I said not unless I absolutely had to. He said, they won't really do anything for you other than give you a bolus and tell you to come see me tomorrow anyway. He asked if I was keeping hydrated. Yes, drinking nothing but water. We decided to monitor my blood pressure and pulse for a while, if I got feeling worse or I kept feeling the funky rhythm, I would go to the ER. 

My blood pressure a little on the low side, but close to my norm. Pulse was too low to be detected.

I wasn't too worried because my husband knows CPR and my girls know how to call 911. I didn't want to be dramatic or scare the girls. That is why I chose to call the answering service instead of heading straight to the ER. My gut usually tells me when to go to the ER, my gut told me I was o.k. So, I am going to try and sleep. Rick will check my blood pressure periodically and take necessary measures, if needed. Good Night.